Thursday, October 13, 2011

JOHN. LET ME BE YOUR SPOKESPERSON.

I was told today that my friend John has a product to improve the communication of Hospitals. Now I'm not sure about it or who exactly owns it but...

JOHN. LET. ME. BE. YOUR. SPOKESPERSON.

I am so sick and tired of all these problems we hit with the hospital just because of communication errors.

Let's start from the beginning.

1. First surgery after finding out I have Cancer and was surprised with a new family.

2. Getting the wrong amount of fluids

3. Getting Fendergan when the doctor said not to.

4. A CT scan being forgotten by the Doctor's assistant.

5. A CT scan and PET scan being rescheduled because someone scheduled them in the wrong order so we came in at 7 AM and then had to come back at 9 in the morning.

6. Getting a Nurse we said we didn't want.

- Today's problems.-

7. Not knowing if we were meeting our regular Oncologist because they didn't specify.

8. A receptionist trying to give my files to a four year old named Anna.

9. Having no clue that my surgeon was in his own surgery until we met for a surgical consult with his assistant.

10. Not knowing why we weren't meeting with our Oncologist and having his called.

10. Finding out that my surgery won't be on my right side of my neck, but the left side.

and I'm sure the list will keep going on and on.

Now I'm so thankful for certain traits I got from my father. When my mother becomes overly stressed with things that happen for no good reason and shouldn't happen in the first place, she just gives up and doesn't care about it because she has too much on her plate.

I on the other hand take after my father. I get so frustrated and fed up with what's going on. I take action and I'm very stern with the people I talk to. I'm not rude or impolite. I'm stern.

So the receptionist.
She was talking to a latino mom and pointed at our charts.
"Is this your address?"
"No."
"Your daughter isn't Annika?"
"That's actually us."
"oh! Your daughter is named Anna. I just saw the first three letters and went with the chart. Hahaha."

That was not amusing. I was having neck surgery. Their four year old could have ended up in surgery and I with whatever she had.
So we're sitting in the Surgical Consult's office talking about chemotherapy and what not. And suddenly a female comes into the room. She says that our Surgeon is currently getting a procedure done. Okay. And he's going to do the surgery on Friday or Saturday as planned.

 Now we weren't sure why we were getting surgery done in the middle of chemo. It doesn't make any sense so we ask her to call my Oncologist. Now I'm so fed up I'm telling her to ask him to come here or give the phone to me so I can talk to him. I want to talk to him face to face. She says she'll ask questions and call him and come back to tell us what he said.

Now here's where my father come into my personality.

I'm sick of waiting around for answer. So I get up and leave and go find my doctor by myself. That's right. I return to MSTI Cancer Clinic to get answers.

"Welcome Back Annika."
"Do we have an appointment with Doctor  1?" ((Keeping his name a secret for obvious reasons.))
"Uhm. No. You have an appointment with Doctor 2."
"Why is that."
"Um. I don't know let me call and find out."
"Well is he here?"
"Yes."
"Let me talk to him."
I'm very stern and it's very evident I'm not very happy at this moment. She just reached over and grabs my hand and smiles real big and loving.
"Oh Annika. I love you. When something needs to be done, you just do it. Let me find him for you."

And just in luck. It was Doctor 1's turn for a slight earful as he walked in the door just as I turned around.

"Hey Annika."
"Hey. Why are we not meeting with you today?"
"It's just how your schedule came out."
"Well my mom and I have questions for you."
"Okay."
"Can we talk right now?"
"Um. No. I have another appointment and then a meeting at 12. I'll come to your room. okay?"
"Yeah. Perfect."

And I was fine with that. And then another nurse came in.

"Is your dad here?"
I was so mad.
"No. He's deceased."
"I'm sorry. If your mom or guardian here?"
"No. She's in the other building."
"Oh well I have your admission papers here for her to sign. I can send them over to the hospital for her to sign there."
"I have to go get her."
"That's fine. I have to call Dr. 2 to see where you'll be meeting. Either here or in the hospital."
"Why don't I bring my mom here and she can sign the papers and then we can see where Dr. 2 will meet us."
"Oh. okay. Yeah that would work!"

I went and got my mom and explained it to her a million miles per hour because I was frustrated with this whole non-communication we had going on in the hospital.

Either way Dr. 2  came and cleared things up immensely and made sense of why we're doing the surgery and why they were pushing it so much.

It's because the tumor could tell us whether we need to do Radiation or not. OH. FANTASTIC. WHY DIDN'T YOU TELL US THAT IN THE FIRST PLACE??

Anyways. Several hours later Dr. 1 and A came into the room.

And I fired several same questions at him.
Why are we doing this?
What's the procedure going to be like?

And then I asked him another question.
"Where is my tumor located?"
They had said it was on the right side. He couldn't feel it.
So we looked at the scans and found it.
It wasn't on the right side.
Oh no.
It was on the left side.
That's right.
For like two weeks I had been told and believed it was on the right side.
Okay.
Thanks for the confidence.

Just. today is not a good day.

So John. PLEASE LET ME BE YOUR SPOKESPERSON.

2 comments:

  1. Oh my goodness that's terrible!!!! Terrible, terrible, terrible! I'm sorry you have to go through all of that when you're already going through so much as it is. ....Maybe you might want to consider coming here for the rest of treatment. Every surgery and medical check I've ever had, the receptionists, doctors, nurses, anesthesiologists, etc, always have me confirm my personal details first before they say anything else to me, just to make sure I'm the right patient. My surgeon always, always is available for her patients even giving out her home phone number and email. The nurses are super nice and helpful. The food is actually pretty tasty. And, NZ is just so beautiful and relaxing. ....Have I convinced you yet? Seriously though, your experience sounds horrible and not what I would've expected from the US health system.

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  2. Sorry, Annika can not leave...but I will kick some butts for you my dear! Sounds like you are doing a fine job of kicking butts on your own, Annika, but if you need back up or just want to take some time off from butt kicking, you know who to call! Love you and your humor and spunk!!!!

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